OC26 - Parents of young children in research: informants, consultants and collaborators.

نویسندگان

  • Sarah Neill
  • Damian Roland
  • Matthew Thompson
  • Natasha Bayes
  • Laura Mullins
  • Monica Lakhanpaul
چکیده

UNLABELLED Theme: ETHICAL ISSUES dignity and humanity. INTRODUCTION Patient and public involvement in research is recognised as best practice in the UK, as services developed with service users are more likely to meet their needs. In child health this often means engaging with parents of young children. AIM To share experiences of engaging with parents of young children in research projects at varying levels of participation. METHODS Methods include parents as participants, as parent panels and as research team members reflecting various steps on the participation ladder (Hart 1992). RESULTS Parents report personal benefits and a range of different challenges when engaging in child health research which impact the management/delivery of research projects. CONCLUSION Key elements of working with parents include time to plan involvement, building respect/mutual understanding, equal access to project activities, continual support for parents, reward and recognition. Research projects need to cost and plan for parents' engagement in research for it to be successful.

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

منابع مشابه

A qualitative study of adolescents, parents and key informants\' experiences towards the importance of peer groups

Background and Purpose: One landmark of adolescence is the increasing value young people place on friendship and relationship with peers.The aim of this study was to determine adolescents and key informants’ perceptions and experiences regarding to importance of peer groups. Methods: Sixty-seven female adolescents (12–19 years) and 11 key informants, recruited from urban and rural areas from S...

متن کامل

Adult children of parents with young-onset dementia narrate the experiences of their youth through metaphors

BACKGROUND Limited research exists on the development and needs of children of parents with young-onset dementia (YOD) (<65 years old). There is scarce knowledge of how these children experience the situation of growing up with a parent with dementia. This study investigates the stories of children of persons with YOD and interprets their metaphorical expressions of their experiences as a sourc...

متن کامل

Increases of Obesity and Overweight in Children: an Alarm for Parents and Policymakers

Childhood obesity is one of the most serious public health challenges of the 21st century. The problem is global and is steadily affecting many low- and middle-income countries, particularly in urban settings. The prevalence has increased at an alarming rate. Globally, in 2013 the number of overweight children under the age of five years old, is estimated to be over 42 million. Close to 31 mill...

متن کامل

The mediating role of self-compassion in relation between cognitive schemas of parents and happiness of children in students of first period of high school in Tehran

Aim: The aim of this research was to investigate the mediating role of self-compassion in relation between cognitive schemas of parents and happiness of children in students of first period of high school in Tehran. Methods: This research was a correlational study. In order to gather the data, three questionnaires, including  Oxford Happiness Inventory (Hill and Argyle, 2002), Young Schema Ques...

متن کامل

مقایسه میزان اهمیت ملاک های رایج انتخاب کتاب کودک برای والدین و کودکان در شهر مشهد

Purpose: The aim of this study is to compare the significant criteria for parents and children in selecting book for children. Methodology: The current work is an applied-evaluative study. The research population consisted of two groups: First, the parents for the children between 7 and 12 years old in Mashhad, whose children were either the members of public libraries or of the Institute for ...

متن کامل

ذخیره در منابع من


  با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

عنوان ژورنال:
  • Nursing children and young people

دوره 28 4  شماره 

صفحات  -

تاریخ انتشار 2016